Lyme Journal
Updated Journal (newest seen first)
So this is what she meant...

When I first started my treatments my practitioner (who has also been through this process) warned me that some parts of the treatment could knock me flat. Up until now, I hadn't noticed much of a difference.  In fact, I have even (at times) felt a tad less exhausted.  My body had been tolerating all of the upped doses and changing of supplements fairly well.  

Last week Wednesday I started on a few new supplements as well as upped my dose of IS-Bab (from 1 dropper, twice a day to 2 droppers in the morning and 1 at night).  I wasn't feeling super great, but I didn't think much of it at first.  Then on Saturday evening I started feeling weaker and a bit woozy.  I thought a good night's sleep was all I needed.  By Monday evening, I wasn't feeling any better.  My whole mind-over-matter motto wasn't working this time.  A decent night's sleep wasn't changing anything.  So I messaged my practitioner, sure that it was just a part of the process that she had warned me about.  She assured me that it was due to the upped dose and had me cut back on it for a bit.

Here's the best I can describe what I was feeling:
  • weak & woozy
  • head felt heavy, weighing on my shoulders and making my arms feel weak
  • feelings of anxiety in my chest, even though mentally I felt ok (although I was waiting on exam results for my Nutrition course which I was a bit nervous about...which I passed!!!)
  • my eyes wanted to close at times, not because of exhaustion as much as just that my body was weak
So, I took a lesser dose this morning as suggested.  I still had a bit of a rough day but it was more manageable.  All of that to get my test results back and find out that I am now officially an ISSA Certified Nutrition Coach! the dose gets to go back up again.  But at least I can do it with a more rested mind and know that it's a step in moving forward with my treatments.
June 14, 2022
It's been about 5 weeks since my last appointment.  It seemed a tad long and, honestly, I felt like I had a bit of a setback.  In some ways I felt like it was just at a stand-still, but in other ways I felt like I had moved a couple of notches back.  That's to be expected considering that in the past month and a half I moved from one town to another and also had a couple of deaths in the family.  That resulted in a long drive for a celebration of life and to spend time with some family.  All things considered, I'm actually right on track!

The co-infection of babasia is certainly active still.  It's heavy in my hip joint, mainly on the right side, which causes some discomfort.  It's also present in my head.  That can sound scary, but I know we have it all under control.  We are upping the doses for the treatments of this not-so-lovely little guy so it's just a matter of time.  In the mean time let me just say that brain fog is a real deal.  That also comes along with a lovely dose of weakness in the head (I really don't know how to explain that one) and, of course, exhaustion.  

Believe it or not, these are actually all good signs.  It's like peeling an onion.  You have to get rid of one layer in order to uncover the next.  No, this layer isn't fun, but at least we know to treat it!  

I asked today where we are on this wellness journey.  There's a little chart in the room that shows the different steps (this is for all body issues, not just Lyme).  As I thought, the answer is kind of complicated.  We are well into phase 3, but are slowly trickling into phases 4 and 5.  They all kind of overlap at a certain point.  So, even though I feel like I'm at a stand-still, the truth is, we are making quite the progress!

The other good news is that I can work on my diet to help in the process.  At first I thought I needed to do a strict elimination diet to help with the inflammation.  But, thankfully I can just stick to a general "lyme" diet and all should be well!  This is great news since I still cook for a family of 5.  We all have our own special dietary needs, so adding another strict one on top of it all would have been a bit more complicated.  

Oh, and let's not forget the sunshine!!  Part of my new regimen is to soak up some sunshine, twice a day for 20 min each time.  It's like a sauna effect (especially when you live in Oklahoma!) so it not only gives me a good dose of Vitamin D, it also helps to ease the aches and pains.  Here's to a natural approach to health and wellness! 😎

Making Progress
May 11, 2022
Yesterday I had another appointment.  It was a week earlier than originally scheduled due to some family schedule conflicts.  Since Lyme patients can be seen up to twice a week it wasn't a bad thing to go back earlier than expected.  We have been making good progress with longer times between visits (to help with finances) so we tend to stretch them out a bit.  As long as we are making good progress, all is well!

And, yes, we are making progress.  That was great news for me since I felt like we had kind of hit a stand-still.  Some days I felt a tad bit better, just enough to know things are working.  And other days I thought, "nope, we have a ways to go."  My practitioner reassured me that this is normal.  It's like a roller coaster ride.  The whole process will have its ups and downs.  As for the ways I'm feeling now, headaches (nothing new, just always underlying), fatigue, weakness, palpitations, muscle/joint pain, she said it's also normal. She said it's like dealing with malaria.  You get easily run down and just don't feel super great.  But you get so used to it that it just becomes normal for you.  Then when you have a good day, you think, "wow, I actually feel better", but, again, it's a roller coaster so that day of feeling better is often followed with several days of what has become your normal.

So, how do we know we are on the right track?  While doing the muscle testing (something reviewed at each appointment), she was able to tell that my drainage system is becoming more open.  This means that the bacteria/parasites are moving on.  Hooray!  We will continue to support the kidneys and liver, digestive system, and female organs for a bit longer.  Then we will move on to the lymphatic system.  This news was super exciting to me because some of the results of dealing with the bacteria and parasites like to show through the skin on my face.  It's like having breakouts, but it's not like the teenage acne.  It's different, red, sometimes swollen, bumpy...but nothing seems to help.  It has gotten better over the last few months of treatments.  However, it's one of the areas I feel has hit a stand still.  She noticed it too.  A lot of that is contributed to extra stress and anxiety.  Since my last visit, 2 weeks ago, I moved (a 20 mile distance that kept me going back and forth for a couple of weeks as we prepped one house and left the other), lost an uncle (suddenly of a heart attack), and lost a dear sister-in-law to her year's long fight with cancer.  To say that my body has been overly stressed and exhausted is an understatement.

We kept all of my doses the same.  However, we did talk about upping my IS-BAB to 2 droppers (the goal) but decided to hold off because it can cause some of that sluggish feeling I've been having.  When tested my body showed that it could handle the increase (which was good news), but since I'm still a bit sluggish we decided to hold off until my life settles down a bit more.  

A little side note on the IS-BAB and why it may cause sluggishness:  It helps the body go into repair mode.  So at night, while sleeping, the body kicks into gear and begins repairing the body.  Then, when it's time to wake up, it may take the body a little bit of time to get going.  Once going it's usually ok.  But since upping the dose could increase the sluggishness, now just wasn't the right time to push the body more.

We also added a temporary supplement called Calm.  It's for extra stress relief and mood support.  With all that's been going on the past couple of weeks, this was a supplement I was happy to add.

My next visit will be in 5 weeks (unless there is a need to go sooner).  I'm excited for the upcoming visit because it likely will mean moving on to the next area of treatment.  All in all, the visit was in perfect timing because it helped to reassure me that things are on the right track.  Just because I don't always feel or notice the differences doesn't mean that my body isn't starting to heal.

And one more thing to note:  the chart I shared here that shows the phases, we are now nearing the end of phase 3!  Another reason to celebrate success!

Slow and Steady
April 25, 2022
Today's appointment went well.  Things seem to be moving slow, but we are actually right on track.   There's more pain, but that's actually a good sign.  It means the parasites are clearing out and the lyme is presenting itself more, which allows us to treat it more thoroughly.  At my last visit we added IS BAB to my list of supplements.  I found out today that it is to treat the Babesia bacteria.  My body is handling it well so we took the dose up.  Our goal is to increase it to 2 droppers and I'm now up to 1 dropper.  So that's good progress!  We also added in some magnesium because it can help in several areas.  My next appointment is in 3 weeks, so we will reassess things then and talk a bit more about the upcoming treatments.

We have also been in the middle of a move.  We are redoing one of the floors (from carpet to vinyl plank) in one room and painting several rooms.  I'm sure that accounts for some of the aches and pains.  Thankfully we will be done with most of the moving this week so maybe things will slow down a tad.

You can find an updated supplement list here.

No Pain, No Gain
April 11, 2022
Today I had a follow up appointment with the practitioner.  We reviewed the supplements I was taking, changed doses, changed a few out, and added a few in.  I think this means we are getting into Phase 3.  She assured me that the extra aches and pains I'm having are due to the Lyme.  Once that first parasite cleanse was done, it allowed the Lyme to come through a bit more. So the good news is that the parasites are clearing out and not over-shadowing the Lyme.  The bad news is that it means I'm in more pain and will be until the Lyme is under control.  So, no pain, no gain!  

What are we doing to treat the pain?  For now, it's heating pads, warm baths, and rest.  We also added in a supplement to help support the ovaries, since that's one area the Lyme is strong in.

My energy level has still been suffering.  I usually make it until early-mid afternoon before I start slowing down.  Thankfully, I haven't been falling asleep while making dinner like I was before.  But once dinner is over, I'm usually flat out exhausted and done for the rest of the evening.  So, we changed my B12 and D supplements from a pill to a liquid so that it can give me a better boost.  

I will be doing another Full Moon Parasite Cleanse next week.  This should help clear things out even more.  Thankfully, between the parasite cleanse and taking the liquid collagen, my skin is starting to clear up.  It's much less red and less inflamed.  It's always a bonus when things like that are noticed.  It was a pretty big concern of mine before because it all shows up in my face.  So to have clearer skin is a huge bonus!

I will also start focusing more on a special dietary plan to help my body through the upcoming stages of treatment.  Thankfully I have some of it underway already due to 12+ years of dealing with special dietary needs in my family.  That makes things like this that much easier to handle!

Taking It Easy
April 8, 2022
This week has been super busy for me.  I typically have things going on Sunday, Monday, and Wednesday.  But this week it has been every day, except today (Friday) and tomorrow (I hope).  It's been a week of practitioner visits (for my son), play practice for 2 of my kids, co-op, end of the year co-op planning, meeting up with friends to chat, and church services.  It's been a great week, but today I feel useless.  My brain power is shot.  Last night, after supper (which thankfully I was able to make w/out falling asleep!), I was just in a zone.  I couldn't focus to do anything productive.  Thankfully I slept well last night so I was able to get up and at least do some normal things around the house (dishes, laundry, a little work, light yoga, etc).  Now here it's mid afternoon and I find myself feeling exhausted and unable to focus.  

However, I'm grateful that I made it this far into the week without being completely run-down (though some days got close!).  I decided to give myself some grace and just let things be today.  It's ok if I'm not overly productive.  It's ok if I don't have the brain-power to knock out some amazing content for my business.  It's ok if "all I do" is the regular daily things around the house.

Giving the body time to heal is sometimes hard for me to do.  I do not enjoy sitting and doing nothing.  I don't enjoy just simply "being". But I have learned over the years to listen to my body and allow myself the time when I need it.  If I push my body too much, it will only rebel more and I'll pay for it later.  So, today I rest.  Today I am thankful to have a day at home.  Today I am thankful to "just be".
Get That Body Moving!
Some is better than none.
March 24, 2022
Some days it's hard to get moving, especially when I'm already achy and just getting up and down from a chair hurts.  Pain is nothing new for me.  It's literally been years since I've had a pain-free day.  However, things have been magnified this week.  It would be easy to just give in and let the pain control me.  But I refuse to go that route.  I know that in the end, I'd truly regret it.  The simple fact is this: if I continue to move my body, my flexibility will return, and even on the days with more pain, I'll still be able to move more freely. And that thought alone is enough to get me moving!

So today I took action.  I rolled out my yoga mat, pulled up my daily yoga app, and selected a restorative 5 minute routine.  Yes, 5 minutes.  You may be thinking that 5 minutes is hardly worth it.  But let me tell you, 5 minutes is better than none!  And on days that I just don't wanna, 5 minutes still seems doable.  And, you better believe I felt it!  By the end of it my arms were hurting as if I'd done some heavy lifting.  So, before you give up and decide that you don't have the time to do a form of excercise, remember this: Some is better than none!  And you can always add time to it as you ease into it.

An Off Day
March 23, 2022
I started off the day fairly well.  I was moving slowly, but actually made it to our weekly co-op 10 minutes early!  We stayed a little late today and, therefore, were home late for lunch.  I realized that I had forgotten to take my morning supplements.  I was also feeling more exhausted (similar to how I was feeling before I started on the supplements).  It's not uncommon for Wednesdays to wear me out.  It makes it hard to get dinner on the table and out the door for our evening Bible class.  Well, tonight I didn't make it back out the door.  I managed to make supper, but had been feeling off for a couple of hours already.  My body felt shaky, my head weak, I just felt like collapsing.  While eating supper, one of the kids was asking how I was doing and if I'd make it to class tonight.  My response was, "I don't know, because right now I feel like curling up into a ball, rocking, and crying."  I wouldn't call it an anxiety attack, but I suppose the end result of how I was feeling was more or less the same feeling.

Was this all because I didn't take my morning supplements (which included B-12)?  Was it because it's a Wednesday and co-op got the better of me?  OR could it even be because it's "that time of the month" and my body is just weak?  Chances are, it's all of the above.  Oh yay!  Oh, and one more thing that's made it a bit "off"...I can't talk. I keep stumbling over my words, my tongue gets tied.  Humorous, of course!  Frustrating, definitely!  
Here's to a relaxing bath, an herbal tea, and a good night's sleep!

Traveling with Lyme
March 21, 2022
It's been a long time since I've traveled much (more than 2ish hours).  This past week I was able to take a trip with my mom to visit my granny.  It was about 5 hrs (before stops) from my house.  By the end of the day I was achy all over.  Thankfully things settled down a bit and the achiness wasn't so severe for the rest of the trip, including the ride home!  

The trickiest part of the trip was remembering to take all of my supplements when I was supposed to.  I lined them up in my room so that they were visible and that helped a lot.  I also did my best to make sure I had snack foods I could enjoy that were also good for me.  Thankfully my granny is a great cook and the meals she served were wonderful!

Generally speaking, I do my best to eat right at home so that when I'm away from home the food I eat isn't as big of a deal.  I'm really not an all or nothing type of person when it comes to my diet.  I don't want my body to go into "shock" when I eat something I shouldn't (like gluten) so I still eat small amounts of it from time to time.  I think this also helps me to tolerate eating differently when I'm away from home.

Now that I'm back home, my plan is to ease into more of a nutrition plan that's suitable for Lyme Disease.  I'll be updating it along the way in the "Nutrition" tab above.  

Let me also use this moment to say that I'm working on my Nutrition Coach Certification so that I can better help other moms when it comes to special dietary needs.  I have been proactive in this area for 12+ years now.  It's been that long since my daughter was diagnosed with Hyperoxaluria...and there was NO one who could help me with it, not even a dietician we were referred to.  At the time, there was also very little information on the internet to help.  Add to that all of our food allergies, MTHFR (hubby), ATP (son), and we have quite the mix of dietary needs! 

I'm super excited to get my certification and learn even more about health and nutrition!

Things are Getting Better!
March 9, 2021

Yesterday was the first day in a long time that I didn't have to fight to keep my eyes open while making supper.  Yep, the struggle has been real!  There were days where I literally had to fight to keep my eyes open.  So crazy!  But I realized later in the evening that I didn't have that problem.  On top of that, I wasn't falling asleep just waiting to go to bed.  Those are 2 major times of day that I fight sleep.  

Today was another day of "wow" in that department.  We have co-op on Wednesdays until noon. I'm normally flat out exhausted for the rest of the day.  This afternoon I didn't feel it so bad.  Now it's time to make dinner and, yes, I'm tired and starting to feel it more, but that's a good 5-6 hours longer than I normally make it.  Hooray for success!!

What's helped with these changes?  I can't say exactly, but I can tell you this...I've been using liquid collagen and aloe juice for a month (today!).  I've also been on the supplements listed above for about 3 weeks now.  To say I'm excited about these small changes is an understatement!


Copyright Amanda Rog